The Gimema Data Center “Health Outcomes Research Unit” has the purpose of developing and managing high quality clinical research programs mainly aimed at improving the Health Related Quality of Life (HRQOL) of patients with haematological diseases, and of contributing to continued improvements in healthcare provision.
The mission of the Unit is to conduct studies collecting the patient’s perspective on treatments and thereby help clinicians manage side effects and also help patients understand both the short and long-term consequences of their disease and treatment.
Headed by Dr. Fabio Efficace, over the years the Unit has collaborated with several international partners and so far, has produced more than 250 papers, stemming from the research activities promoted by the Unit.
Personnel
The Unit includes people with various professional backgrounds such as statisticians, psychologists and clinicians. The Head Dr. Fabio Efficace is responsible for the daily management of staff and the development of research programs. Statistical research activities focus on the implementation and assessment of various methods for analyzing, interpreting and reporting Health-Related Quality of Life data in each protocol/study. The Unit is involved in a number of international health outcomes research projects in oncology and also closely collaborates with key European and US university-based hospitals.
Fabio Efficace
Head of the Unit
Francesco Sparano
Research associate
Francesca Tartaglia
Research Assistant
Laura Cannella
Haematologist
Lorenzo Santilli
Statistician
Serena Puglia
Statistician
Daniela Krepper
Research Fellow