GIMEMA-ALLIANCE is the first digital healthcare system in Italy dedicated to hematology patients and their doctors
Background
The GIMEMA-ALLIANCE (ALLIANCE: “An onLine-pLatform to improve patient-centered care during the COVID-19 pAndemic: a GIMEMA surveillaNce program in hematologiC malignanciEs”) platform was designed for the onco-hematologic setting and includes secure portals for both patients and physicians. It enables electronic Patient-Reported Outcome (ePRO) assessments, allowing physicians to view real-time, easy-to-read graphical summaries of individual patient symptoms and health-related quality of life (HRQoL) profile.
Watch the introduction videos and explore the demo
Explore the demo version of the GIMEMA-ALLIANCE platform:
Results
Nearly 600 patients with hematologic malignancies, followed by more than 80 physicians across
several Italian hospitals, were registered on the platform. A survey assessing physicians’
perceptions of its usability and clinical utility showed strong adoption from their perspective. Most physicians agreed that the platform supports shared decision-making and improves the detection of symptomatic adverse events. In addition, patients—both younger and older—reported high levels of usability and utility of the platform.
Publications
Full-papers
The GIMEMA-ALLIANCE Digital Health Platform for Patients With Hematologic Malignancies in the COVID-19 Pandemic and Postpandemic Era: Protocol for a Multicenter, Prospective, Observational Study.
Efficace F, Breccia M, Fazi P, Cottone F, Holzner B, Vignetti M
JMIR Res Protoc. 2021; 10(6): e25271.
Physicians’ Perceptions of Clinical Utility of a Digital Health Tool for Electronic Patient-Reported Outcome Monitoring in Real-Life Hematology Practice. Evidence From the GIMEMA-ALLIANCE Platform.
Efficace F, Patriarca A, Luppi M, et al.
Front Oncol. 2022; 12: 826040 For patients For healthcare professionals
Abstracts
Clinical Utility and Physician Perceptions of a Digital Platform for Electronic Patient-Reported Outcomes Monitoring in Patients with Hematologic Malignancies in Real-World Practice.
Efficace F, Breccia M, Caocci G, et al.
Blood. 2021;138:4017
Patients’ Perception of Usability and Utility of a Digital Health Tool for Electronic Patient-Reported Outcomes Monitoring in Real-Life Hematology Practice: Evidence from the Gimema-Alliance Platform.
Efficace F, Luppi M, Potenza L, et al.
Blood. 2023;142:3714